Help Nancy Pantoni save the life of her disabled adult son, Dom, who suffers from a rare genetic disorder called DELETION 22Q.
Many thanks to all our friends & supporters
who attended our two Spring Fundraisers.
Justice For Dom Benefit Party
at OTB Bicycle Cafe on May 29, 2014
Justice For Dom Benefit Concert
at the Hard Rock Cafe on June 5, 2014
Many thanks to the 4 great bands who
donated their time and talent!
SPECIAL THANKS TO THE FOLLOWING DONORS:
Attorney Matthew Lovewell for donating Free Estate Planning
Stephanie Stepanchak for Shooting & Editing Video
Camod-Ican Kitchen for donating a Gift Certificate
Kelly Proctor Maryanski for donating a Mary Kay Gift Basket
Scott McLean for donating Music CDs
Angel Blue Band for donating a T-Shirt
Jill West and Blues Attack for donating Music CDs
Zarien Santiago Photography for donating
a beautiful Pittsburgh Skyline Print
JUSTICE FOR DOM IN THE NEWS!
Who knows best? Dispute over disabled man's
care magnifies guardianship’s complexities
Written By Halle Stockton | PublicSource | April 6, 2014
Party to be Named Guardian of Your Adult Child
Written By Chana Frid, Posted April 10, 2014
Dom with his family...
Nancy's son, Dominic Pantoni, was born with a rare genetic disorder called DELETION 22Q SYNDROME. Nancy agreed to a court-appointed guardian for Dominic in 2009 ONLY because she could not afford the specialized full-time care he suddenly needed. In the past five years Dominic's health has deteriorated, and he now has Stage 3 Kidney Disease. Nancy has spent her entire life savings in her seven-year fight to gain guardianship of her beloved son, and now she needs our help. She also wants Dom to be seen by medical experts not covered by insurance. PLEASE DONATE TO THE JUSTICE FOR DOM MEDICAL & LEGAL FUND. Thank you so much.
ONLINE DONATIONS VIA YOUCARING.COM!
Nancy Pantoni is on a mission to save the life of her son, Dom. Dom was born with a genetic disorder known as Deletion 22Q Syndrome, which causes life-long physical and mental impairment. He has dealt with special needs throughout his life. Nancy is a health care professional (a practicing nurse), and she believes her son is not receiving proper medical care for his condition.
The 22q11.2 deletion syndrome is caused by a missing section of chromosome 22. Present in 1 out of every 2,000–4,000 live births, in 1 in 68 children with congenital heart disease, and in 5 to 8 percent of children born with cleft palate, the 22q11.2 deletion is almost as common as Down syndrome, a widely recognized chromosomal disorder. The deletion has the potential to affect almost every system in the body and can cause a wide range of health problems.
Please contact Nancy Pantoni if you can help in any way. If you know of an attorney willing to do pro bono work on a guardianship case, that would be fantastic. If you know someone in the local media willing to do a story, that would be phenomenal. If you know of a doctor with expertise treating Deletion 22Q Syndrome, please let us know.
Voice Mail: 718-867-8500
deletion 22q syndrome
contact nancy pantoni
Mission to save dom
Nancy Pantoni and her two sons, Dominic on the left, and Vinny on the right.
Photo was taken in 2008 before Dom entered the group home.