Help Nancy Pantoni save the life of her disabled adult son, Dom, who suffers from a rare genetic disorder called DELETION 22Q.
The National Resource Center for Supported Decision-Making is accepting applications for the third round of their State Grant Program. They will be awarding grants for state-based projects that adopt an innovative approach to increase knowledge of and access to Supported Decision-Making by older adults and people with intellectual and developmental disabilities across the life course. For more details, please CLICK HERE for the application and funding announcement. The deadline for applications is 11:59 PM EDT on 08/17/18.
Please contact Nancy Pantoni if you can help in any way. We are seeking: an attorney willing to work pro bono on a guardianship case, a journalist willing to write a story, and a doctor with experience and expertise treating Deletion 22Q Syndrome. Thank you for your support.
deletion 22q syndrome
Nancy's son, Dominic Pantoni, was born with a rare genetic disorder called DELETION 22Q SYNDROME. Nancy agreed to a court-appointed guardian for Dominic in 2009 ONLY because she could not afford the specialized full-time care he suddenly needed. In the past few years Dominic's health has deteriorated, and he now has Stage 3 Kidney Disease. Nancy has spent her entire life savings in her ongoing fight to gain guardianship of her beloved son. She also wants Dom to be seen by medical experts not covered by insurance.
Mission to save dom
Nancy Pantoni and her two sons, Dominic on the left, and Vinny on the right.
Photo was taken in 2008 before Dom entered the group home.
Nancy Pantoni is on a mission to save the life of her son, Dom. Dom was born with a genetic disorder known as Deletion 22Q Syndrome, which causes life-long physical and mental impairment. He has dealt with special needs throughout his life. Nancy is a health care professional (a practicing nurse), and she believes her son is not receiving proper medical care for his condition.
The 22q11.2 deletion syndrome is caused by a missing section of chromosome 22. Present in 1 out of every 2,000–4,000 live births, in 1 in 68 children with congenital heart disease, and in 5 to 8 percent of children born with cleft palate, the 22q11.2 deletion is almost as common as Down syndrome, a widely recognized chromosomal disorder. The deletion has the potential to affect almost every system in the body and can cause a wide range of health problems.
contact nancy pantoni
JUSTICE FOR DOM IN THE NEWS!
Who knows best? Dispute over disabled man's
care magnifies guardianship’s complexities
Written By Halle Stockton | PublicSource | April 6, 2014
Party to be Named Guardian of Your Adult Child
Written By Chana Frid, Posted April 10, 2014
Dom with his family...